I don’t look ill and I’ve learned to manage my energy so there’s a whole lot more slower activity going on and less balls-to-the-wall stuff. Well, except the odd 5km walk to test my boundaries – that one’s still firmly stopping me.
When I decided to get off chemo and try something else, at first it felt like riding without the support of training wheels as I looked into the future with squinted eyes wondering how the tumours would react. Would they have a party and spread out? Would it make little difference being off the meds as on them? At least I knew I’d feel better and that’s exactly what’s happened.
At my last visit to the onco 2 months ago, I had an ultrasound, a CT scan, and blood tests. The resulting news was a mixed bag. Has it ever not been?!
CA125 tumour marker results:
Jul 2015 – 169 (This is while the chemo drugs were still in my system)
Sep 2015 – 200+ (We’re excited that it hasn’t spiked dramatically in 2 months)
Nov 2015 – 400+ (What is this inflammation about? Started re-feeding programme. Started hormone blocker Tamoxifen)
Feb 2016 – 600+ (We’re excited that it hasn’t doubled over the last result but rather only increased by 50%)
So what does this mean?
Yes, it’s a little scary to know that when the tumours were debulked in 2013, the count was 300+. I can’t remember exactly how I felt then but I guess I feel almost as strong now albeit a little war-torn.
It’s a surface tumour so although it’s metasticised, it’s not about to become a dreaded leukaemia. The slow-growth nature means there’s some time to figure things out such as, now we know for sure that chemo wasn’t working. These last 8 months’ results show that the increase is the same as it was on the drugs so, yay, I can stay off them. Also, by now, I’ll find out what effect the hormone blocker has on my system. In conjunction with the eating plan that I’m still following (because I feel so much better on it) that simultaneously restricts hormone intake and eliminates existing stock that my body’s holding onto, is a big detox.
I’m still half talking about the clinical trial that’s on the horizon. I’m waiting for an update, along with a number of other people. Ho hum…